tag:blogger.com,1999:blog-10613195.post115396531742360450..comments2023-11-05T02:58:15.563-08:00Comments on Bliss and the Color Pink: "Tourette's is ruining my life."Adriana Blisshttp://www.blogger.com/profile/14120973373594320270noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-10613195.post-1154410473648842552006-07-31T22:34:00.000-07:002006-07-31T22:34:00.000-07:00Thank you, Richard, so much. I think it's getting ...Thank you, Richard, so much. I think it's getting better already - it's just a bit agonizing to wait.<BR/><BR/>Thank you Shuana. :)Adriana Blisshttps://www.blogger.com/profile/14120973373594320270noreply@blogger.comtag:blogger.com,1999:blog-10613195.post-1154314126807585452006-07-30T19:48:00.000-07:002006-07-30T19:48:00.000-07:00I've missed reading your blog for a while. So sorr...I've missed reading your blog for a while. So sorry for the difficulties you are facing. It is heartbreaking when children suffer, and their parents.Shuanahttps://www.blogger.com/profile/05440342004047512700noreply@blogger.comtag:blogger.com,1999:blog-10613195.post-1154179795126782312006-07-29T06:29:00.000-07:002006-07-29T06:29:00.000-07:00Adriana, this is so painful to read. As a father I...Adriana, this is so painful to read. As a father I feel for him so much, and for you all. It's so hard, and yet sometimes necessary, to hide the full extent of your caring from the ones you care about. You're doing the right thing to give him positive thinking. And the hope is warranted: medication will work eventually, maybe in a few short weeks. Hold on, it will get better.Richard Lawrence Cohenhttps://www.blogger.com/profile/01951947957345891398noreply@blogger.comtag:blogger.com,1999:blog-10613195.post-1154116174686647602006-07-28T12:49:00.000-07:002006-07-28T12:49:00.000-07:00Thank you, Dale. Jean, interesting about your frie...Thank you, Dale. <BR/><BR/>Jean, interesting about your friend - it's typical that the tics subside or lessen in adults. And thank you.Adriana Blisshttps://www.blogger.com/profile/14120973373594320270noreply@blogger.comtag:blogger.com,1999:blog-10613195.post-1154077129512533042006-07-28T01:58:00.000-07:002006-07-28T01:58:00.000-07:00Adriana, I'm so sorry. How shitty. I have a friend...Adriana, I'm so sorry. How shitty. <BR/><BR/>I have a friend with Tourette's - and four small children. She had to stop medication with the first pregnancy. The tics have never come back to any great extent. I guess the kids take all her attention and block them out, in the same way as many people with Tourette's can perform on stage without tics. In other words, you just never know - which is hopeful as well as frightening.<BR/><BR/>Lots of love to you and J and all of you.Jeanhttps://www.blogger.com/profile/08690685768980280402noreply@blogger.comtag:blogger.com,1999:blog-10613195.post-1154062266345605912006-07-27T21:51:00.000-07:002006-07-27T21:51:00.000-07:00{{{Adriana}}}{{{Adriana}}}Dalehttps://www.blogger.com/profile/14523194846272870013noreply@blogger.comtag:blogger.com,1999:blog-10613195.post-1154048284919394172006-07-27T17:58:00.000-07:002006-07-27T17:58:00.000-07:00Tarakuanyin, thank you for such a beautiful, sweet...Tarakuanyin, thank you for such a beautiful, sweet and understanding comment. Very good point about the particular difficulty with TS.<BR/><BR/>I hope so, too, Lori. <BR/><BR/>Freedomgirl, I was surprised and relieved to see your post, having found it through Technorati. Thanks for stopping by. There are probably some other things going on with J that are contributing to his tics - possibly he's having mood swings which will increase the tics. I'm glad you have such a wonderful doctor - that's how we feel about the psych doc we have. Not so thrilled with the neurologist - he's pretty busy and doesn't have patience with panicking mothers unlike the other who NEVER fails to call (and not charge) when I ring him. I'm glad your situation is under control...sounds like a good situation.Adriana Blisshttps://www.blogger.com/profile/14120973373594320270noreply@blogger.comtag:blogger.com,1999:blog-10613195.post-1154026441021992092006-07-27T11:54:00.000-07:002006-07-27T11:54:00.000-07:00Thanks for stopping by and commenting on my blog. ...Thanks for stopping by and commenting on my blog. As you read, we are dealing with TS, too. Blaine is only 12, so we may have yet to see the full scope of her tics. My hope is that it won't get any worse. <EM>Hey, I can hope, right?</EM> It does not require meds at this time, and the doctor left it totally up to her if she wants to manage it that way in the future. Our doc is <EM>awesome</EM>. He speaks <EM>to her</EM>, not <EM>at her</EM> or <EM>about her</EM> to me. With Jr High appraoching, I hope she is able to handle the stress of being a teenager and that the tics do not worsen...its hard enough just being that age.FreedomGirlhttps://www.blogger.com/profile/15389173788222394955noreply@blogger.comtag:blogger.com,1999:blog-10613195.post-1154020653065775912006-07-27T10:17:00.000-07:002006-07-27T10:17:00.000-07:00Aw, bud...that's so tough, especially w/J being a ...Aw, bud...that's so tough, especially w/J being a teenager and going through all of the already-hard stuff that brings with it. I can only hope he'll still have fun at camp and that the new meds will help.Lorihttps://www.blogger.com/profile/02878511381035535885noreply@blogger.comtag:blogger.com,1999:blog-10613195.post-1154015653087444072006-07-27T08:54:00.000-07:002006-07-27T08:54:00.000-07:00This is so sad. I think, if you're a parent, it do...This is so sad. I think, if you're a parent, it doesn't really matter whether it's something like Tourette's, which makes life so difficult for the child that your heart bleeds for him, or cancer, which is life-threatening. The outcomes may be different (and yes, cancer's outcome is usually worse), but still, the pain for you is real and wrenching. There's a "death" in illnesses like Tourette's too, the death of all those expectations of "normal" camps, and uncomplicated friendships -- or friendships at all, perhaps. You and he have to adapt in so many ways, and I can imagine the pain for both of you. And, as well, a kid with something like cancer is "visible" in a sense. A head bald from chemo brings sympathy. But tics like those of Tourette's aren't really understood by most people, and so you and J are always at risk of judgment. You're brave to get up every day and face the challenges with the humor and practical support that you reveal in your writing. J's lucky to have you as a mom.Shannon Hopkinshttps://www.blogger.com/profile/12724093833220026696noreply@blogger.com